Tipper - adrenal tumor/breathing issues

[beaglemom3]

Hi Patti,
I am happy to hear Tipper is handling storms better, that's wonderful! I hope she continues to improve with them.

[goldengirl88]

Hi Everyone:
Well I just gave Tipper the one pill around 4pm yesterday and she seemed to do well with that for hours. She finally laid her head down in the closet and slept. The storm lasted a long time and there was another tornado, but it was not close to us thank goodness. We had terrible wind, and it rained all night, but finally in the early morning hours the thunder quit. It is dark here and the dogs have walked. Part way thru the walk the rain started, but just really fine, Tipper was ok and kept walking. It is supposed to get stormy again tonite when a front comes in. I may have to give her another pill. Last nite when the thunder kept booming I could hear Elvis moving about in his cage. Then we had a real loud boom and he started singing Twinkle Twinkle Little Star! It was too funny until he kept repeating it over and over. I think he was nervous as I cover him at nite and he could probably see the flashes of light through his cover from the lightening. Our power went out, so thank God I invested in the generator. We had power and no one else did. It makes me feel bad sometimes especially in the winter, but I was already warned by the installer not to run any extension cords to the neighbors as it would cause trouble for me. I received this huge packet from the pain clinic they want every bit of information except my first grade teachers name. This will take eternity to fill out. There are warnings highlighted on the front about what happens to you if it is not filled out properly, if you are 15 minutes late, if you expect pain pills on the first visit, so on and so forth. it was a real turn off to me, and who is the judge of filled out properly?? I am beginning to sense a place that keeps you coming back for a steady income. That is exactly what I do not want. I also do not even want to take pills and normally refuse them. So I already do not have high expectations of this place and may decide to go to Pittsburgh. I don't want to put someone's daughter thru college, I just want a nerve block. If that is not possible where this is at then so be it I will have to live with it. Tipper is snoring away after her walk, so I am going to try and get something accomplished in here today. Blessings
Patti

[goldengirl88]

Hi Everyone:
I have been mulling this over for a few weeks and want to throw it out there. One of the reasons I have not chosen to remove Tipper's adrenal tumor was because
she also has a pituitary tumor and would still not be cured. Because her numbers and doses have run the gamut. Since she had the ct scan and they said her tumor on her pituitary was not able to be seen and so must be extremely small. I have been wondering if even though her testing pointed to pituitary, if it is possible she does not even have one there? Could it be possible I am just dealing with an adrenal tumor, and it is secreting. Is this why she has been tricky to manage? This thought has been going on with me and no one has ever told me they even saw the pituitary tumor on the scan. Could it be because there is none?? I think I will be sending a letter to the IMS asking about this. I need to know the answer in the event July's ultra sound shows more growth. I guess I am just wondering if it is probable she was misdiagnosed?? We had a lite rain start earlier and it is dark out, I am holding off on meds for Tipper. Blessings
Patti

[lulusmom]

Hi Patti,

If imaging shows that the opposing adrenal gland is either normal in size or enlarged, that would be a very good indication that Tipper has PDH. If she does not have PDH and it is an adrenal tumor that is secreting cortisol, the opposing adrenal gland would be smaller or even atrophied.

Glynda

[goldengirl88]

Thank you Glynda. The other adrenal is a lot smaller! I am wondering if this is all she has had all this time?? I am emailing the IMS and want clarification if anyone at all has ever seen a pituitary tumor of any size on her. If this is the case she would then be cured if we got rid of this adrenal tumor, so that that does change how things were being looked at before. If no one knows the answer though then we would need and MRI to confirm that there is none. Lots of things to consider as nothing is ever as simple as it seems with this disease. Thank you for you help and I hope you are doing well. We are in for more tornado weather warnings are already coming out. Blessings
Patti

[goldengirl88]

Hi Everyone:
Well it is thundering and ready to storm. I have had to give Tipper meds again! This weather just will not give her a break. We are to get bad wind and rain. It looks like swampland outside already. I have emailed Tipper's IMS and asked her the questions in my previous post. I asked her if she had any ideas to help figure it out that are not invasive or costly. It is pouring sheets of rain right now thunder and lightening, the whole deal. I am so sick of this! Tipper went into the closet. She is not in a panic though so I think the meds had time to work. The place that had the tornado last not got no warning their system was not working. It took out 10 houses! Poor people, this year is relentless for storms. Blessings
Patti

[addy]

The weather is crazy. Today I was at working sitting out in the sun for lunch and 20 minutes away at our house, hubby said it was pouring rain.

The radar showed a storm cell only over our village, go figure.

Patti- are you thinking of possible adrenal surgery?

[molly muffin]

Patti, thinking of you and Tipper. Is the other adrenal smaller because it is a normal size compared to the one with the tumor, or is it smaller than normal That would be a key I'd think.

hugs
Sharlene and molly muffin

[goldengirl88]

Addy:
I am not sure, but if this next Ultra sound shows growth, I need to really think long and hard about this. If Tipper has no pdh then this would in fact cure her. I am just scared of losing my girl, and because no one has ever told me that they saw a tumor on her pituitary on her ct scan, I guess I am questioning the diagnosis. I was leaning towards just watching this adrenal tumor with the ultra sound. If I find out Tipper does not have pdh I am really going to be upset asci could have done this operation 2 years ago when she was younger and had less issues. My mind is jumbled. It's hard for people with families and relatives to understand my plight, but Tipper is all I have and I am worried since this tumor grew for the first time. When you tell me it is getting the size of a walnut, I am worried. I just need to know for sure what I am dealing with. Blessings
Patti

[goldengirl88]

Hi Everyone:
I emailed my IMS and will be waiting for a response from her. I had to end up pilling Tipper and was fortunate enough to get it in her so it could start working before the storm really got going. It was all the thunder and lightening again, and it rained all nite and is still coming down. My babies have to be in standing water to go potty as the whole yard is like a lake. I am not taking Tipper for her BP today as it would be a waste of time with this weather. She did well on with her pill. She even went out when it slowed down to go potty. This dog has been thru so much I have to give her credit she had dealt with a lot. It seems one thing after another sometimes. She is ok this morning with the rain as long as there is no thunder. Toby did bark a few times last nite when the lightening struck something. Elvis was quiet thankfully and did not start his nervous singing in the middle of the nite. We are to get a break for about 2 days and then storms again and 90 degree weather. I am hoping I do not get water in my garage which sometimes happens with too much water coming down too fast. I do not need that clean up as I am barely making it through the house to clean. Blessings
Patti