Tipper - adrenal tumor/breathing issues

[goldengirl88]

Hi Everyone:
We are back from laser therapy, got in a torrential down pour none the less. Tipper is in the closet as it is coming down in buckets. Yes I too am wondering about this every other day dosage. I am thinking it over. I am probably going to have to get 5mg of Trilostane from Diamondback. I just cannot have this willy nilly crap, up and down, that cannot be good either. Even though I have mixed emotions on the compounding, I may have to do it. I cannot have her feeling like this. Today at laser therapy she just wanted the Dr. to let her alone and was getting quite annoyed at her. She was panting a lot, and shaking. Could be how she is feeling and could be the weather. She has not been real good the last five days and I am extremely worried about her. I think I am going to call the vets and have them call him to get an RX for the 5mg.

[goldengirl88]

Back Again!
Well I just made an executive decision to get 5mg compounded and go with that strategy. I called Diamondback and gave all my info and credit cards, and the vet that is currently in at my vets is to get me an RX and get it to them today. She will be on 25mg then which I will probably do in one ,as her previous dose was 30mg 1 dose. I just do not want to be flopping around with her dosages especially the way she is feeling. Tipper shows very strong symptoms right away when uncontrolled. They said if the vet gets a move on I can get it in 4-5 days. This vet better not fool around any more, cause he has not seen me when I get really angry, and where Tipper is involved- he better look out as I made myself crystal clear to him today as to what I expect. It's only right especially with what I have paid him. I could have blown a gasket waiting in his office today for him. Any more miss steps and things will be flying in his office, and in his direction. I am exhausted from no sleep and all this crap that I should never have to go thru. it is just like a battle and it does not have to be like that, just do your ____ job! Hope all of the babies are doing ok in these storms. Blessings
Patti

[molly muffin]

Sometimes you just have to make a decision and go with it.

I think you are doing excellent. I think a balance is good for them with cortisol, but I also think with an adrenal tumor that is is hard to get that balance because it might be more active at different times of the day. That is hard to know when it would be happening and only by really being able to tell by her actions might you know, which I'm sure you would, since you know her so well.

You're doing great
hugs,
Sharlene and Molly Muffin

[Trixie]

Patti...I too am doing a vetoryl/trilostane combo. I get my 4mg caps from Diamondback too. It's been going fine...they definitely have been working. So most part brand name and part generic. It must be up to par because Trixie is finally getting back to normal.
I hope the 25mg will do the trick for Tipper.
We had one storm pass a few hours ago...Trixie hid in the bathroom. The skies are darkening right now so looks like we've got more coming. Hope your weather is cleared up by now!

Barbara

[Junior's Mom]

Patti, Tipper is lucky to have you for her mom. I hope things get better for her soon. Just so I understand, she was on 10mg twice a day, and now you are switching her to 25mg once a day? Are you gradually increasing her, or changing it right up? Junior has been getting 5mg compounded without any problems. Diamondback seems pretty well liked on here, so I wouldn't worry about the compounding.

[doxiesrock912]

Patti, Daisy has been on compounded Trilo since day one. She's doing well as you know.

[goldengirl88]

Hi Everyone:
Well I guess my vet did understand my feelings after all. I called into his office to have the vet on duty order Trilostane at 5mg for Tipper. They must have called him at home immediately. He called me and said ' I thought we decided to follow Dr. Fox's approval of the 30mg every other day?" I said " well after giving it much thought Tipper was on 30mg, and her pre number got low from it, and 20mg is not enough, so 25mg is in the middle and that is what I want to try." It should not overdose her as she has had the 30 and didn't, so I am praying this will go smoothly and that this will even her out, and not drop her too low as I am going for the once a day dosing of 3 pills. My vet is against compounding, I don't really like it either, but for Tipper's health I need to get this done already, and that may or may not be the solution. If not then I will try the every other day 30mg. I am trying to balance not having this tumor grow with keeping her symptoms at bay. He knows I never do anything without researching it and thinking it through, so he said he would call it in last nite. He said since I am with her 24/7 and know her so well ,I will know in a day or two if it works. If it doesn't at least I tried that avenue first. If not I will be buying 3 boxes of 10mg Vetoryl a month, very expensive way to treat. The other way I have to buy 2 boxes of 10mg Vetoryl and 5mg of compounded capsules, so it is expensive either way, there is nothing I can do about it. It poured here on and off all nite. Tipper was in and out of the closet. I saw her chewing at her back foot thins morning. When I got close to her she was like sucking on it. I looked at it and sure enough there are 2 small calcium deposits about the size of a pin head. She has it bleeding from sucking and biting it. I may have to wrap it, but she is an expert at unwrapping anything. Any ideas on this are welcome. I am going to put some Panalog on it, since that won't hurt her if she licks it. I will have to show it to the vet Wednesday when she gets her booster for Adequan. It has been raining this morning also, and she needs to walk, she has not walked in 2 days because of the humidity. I need to get this xtra weight off her she picked up during this uncontrolled spell. I pray this week of being uncontrolled has not done any further damage to her already. I got a beautiful Rosary yesterday that was blessed and prayed on by Father Madigan of Oblates. They say a prayer for Tipper. God help all of us and our babies.
Patti

[doxiesrock912]

Patti, I have no experience with calcium deposits so I can't offer advice. Others will chime in shortly I'm sure

I agree that 25mg is the way to go. It can't hurt, right?

[Lillo]

Hi Everyone:
Well I guess my vet did understand my feelings after all. I called into his office to have the vet on duty order Trilostane at 5mg for Tipper. They must have called him at home immediately. He called me and said ' I thought we decided to follow Dr. Fox's approval of the 30mg every other day?" I said " well after giving it much thought Tipper was on 30mg, and her pre number got low from it, and 20mg is not enough, so 25mg is in the middle and that is what I want to try." It should not overdose her as she has had the 30 and didn't, so I am praying this will go smoothly and that this will even her out, and not drop her too low as I am going for the once a day dosing of 3 pills. My vet is against compounding, I don't really like it either, but for Tipper's health I need to get this done already, and that may or may not be the solution. If not then I will try the every other day 30mg. I am trying to balance not having this tumor grow with keeping her symptoms at bay. He knows I never do anything without researching it and thinking it through, so he said he would call it in last nite. He said since I am with her 24/7 and know her so well ,I will know in a day or two if it works. If it doesn't at least I tried that avenue first. If not I will be buying 3 boxes of 10mg Vetoryl a month, very expensive way to treat. The other way I have to buy 2 boxes of 10mg Vetoryl and 5mg of compounded capsules, so it is expensive either way, there is nothing I can do about it. It poured here on and off all nite. Tipper was in and out of the closet. I saw her chewing at her back foot thins morning. When I got close to her she was like sucking on it. I looked at it and sure enough there are 2 small calcium deposits about the size of a pin head. She has it bleeding from sucking and biting it. I may have to wrap it, but she is an expert at unwrapping anything. Any ideas on this are welcome. I am going to put some Panalog on it, since that won't hurt her if she licks it. I will have to show it to the vet Wednesday when she gets her booster for Adequan. It has been raining this morning also, and she needs to walk, she has not walked in 2 days because of the humidity. I need to get this xtra weight off her she picked up during this uncontrolled spell. I pray this week of being uncontrolled has not done any further damage to her already. I got a beautiful Rosary yesterday that was blessed and prayed on by Father Madigan of Oblates. They say a prayer for Tipper. God help all of us and our babies.
Patti

Hi Patti I was wondering...Lillo was given the tablets in 5mg...what they did was the pharmacy split the tablets so there was twice the amount. it cost 45 euros (around $60). That would work out for your dose you talk about at $150 per month @25mg and $180 @30mg. Wow thats a lot! Is it the same price in america as Europe?

[Simba's Mom]

Sending hugs and prayers for you and Tipper..