Re: Bellas diagnosis
Hi and welcome to you and Bella,
I second Marianne - DO NOT START TRILOSTANE. I will add for any reason, no matter who insists that you do.
When I first heard the word Cushing's it was when my Squirt was getting prepared for a dental and they found her cortisol elevated. So we started the testing process and I have every test available run because I wanted to be as sure as possible this was truly what we were dealing with. Her abdominal ultrasound proved it was NOT Cushing's but rather a tumor on her spleen causing the high cortisol readings. Once that tumor was removed her cortisol returned to normal and remained normal for several years after. Had I started treatment in the beginning without knowing about that tumor, she could easily have died when that tumor rupture her spleen. Not to mention giving her a VERY powerful drug when she didn't need it at all. So please, I beg you for Bella's sake, do not start the Trilostane.
What I would be working on this morning is finding an IMS (Internal Medicine Specialist) to see Bella ASAP. She simply has too many things going on for me to feel comfortable with a Cushing's diagnosis at this stage.
I am glad you found us and look forward to learning more about you and Bella.
Hugs,
Leslie
"May you know that absence is full of tender presence and that nothing is ever lost or forgotten." John O'Donahue, "Eternal Echoes"
Death is not a changing of worlds as most imagine, as much as the walls of this world infinitely expanding.