Re: Tipper - adrenal tumor/breathing issues
Dear Patti
Thank you for your kind words. You have enough on your plate. When you are dealing with this disease,it can zap your energy,the constant tests,blood tests,symptoms, drug adjustments, and what it is doing to your baby.
Apollo had slight mouth tremors on Trilostane. He was on such a low dosage. His cortisol would get too low and then we'd take him off to raise it. It is a juggling act. But we added in thyroid medicine, milk thistle, antibiotics for the skin infections,etc.,can not remember half the supplements he took. Apollo did live to be one month short of 14.aI agree waiting 3 months would make me nervous too. I would take care of him again in a heartbeat. I relished every day I had with him. Monitor Tipper and if you notice changes than contact the vet.Each case is different. What bothers me the most is there have not been more advances in treating this horrible disease. Tipper is just so cute.
Hugs Sonja and Angel Apollo
Re: Tipper - adrenal tumor/breathing issues
Hi Everyone:
Well Tipper my rock star has walked 4 times today. I think her back legs are a little tired. I want to see if more exercise will help these tremors. Sonja thank you for the help, I can always use some wisdom as sometimes I think I will go crazy from this disease. I am sad there are no advances with this disease too. Tipper is snoring away so she is definitely tired out. Toby kept up, for such a little dog he can really walk. I assume Yorkies are not known for being walking partners with those little legs, but he matches us step for step. I am going to get my vet to order me 2 mg, 6 mg, and 7 mg trilostane. I have most other doses. Then if I need to go up or down like 2 mgs I can do that without waiting for the meds. I could tell Tipper's cortisolmwas low today as we have lots of wind gusts going on and she was a little apprehensive about the situation and was acting a bit scared of it. Well they are done walking for the day, so it won't bother her anymore. She had her Adequan shot yesterday too so hopefully the trachea will calm down and not cause he'd discomfort. Even though Dechra said stay the course, I feel like I want to drop down 1 mg. I am not comfortable with her pre being low, it just makes me nervous. I need to think on it, as I don't want the post climbing and causing symptoms. She has been on just about every dose but 26 mg. Maybe that is the magic number that will get the pre number OK without a rise in the post?? I hate this it is just like a chess game. Blessings
Patti
Re: Tipper - adrenal tumor/breathing issues
The numbers as they are seem to be pretty good, she has come up from the lower pre number of .9 so that is an improvement, and the post is where it should be. So, you'll have to keep an eye on her, test sooner if need be, otherwise wait and give her and you a break.
So sorry to hear that Delora is failing. :(
We have the wind here too and suppose to get showers this evening. Yea, I hear the word snow for a maybe next week sometime. If it happens, cruddy as that is, at least it will melt during the day.
Sounds like you wore the gang out with the walks today. Hope it leads to a peaceful night. I think the same thing, that the more walks, the more tired, maybe the less tremors. Either way, you will know more for certain after you have kept records of it for awhile.
hugs
Sharlene and molly muffin
Re: Tipper - adrenal tumor/breathing issues
those numbers sound good! and 4 walks today..not bad at all!
i feel a migraine coming up, so i took my meds and off to bed now.
hope you and tipper have a good night sleep.
Re: Tipper - adrenal tumor/breathing issues
Patti. Tipper seems to be doing well aside from the tremors.
Daisy couldn't do 4 walks in one day. No way. Someday I hope that she will although she's definitely stronger since the dose increase.
Re: Tipper - adrenal tumor/breathing issues
Hi Everyone:
Well last nite Tipper had bad tremors and she had walked four times. I am anxious to see if it is all the exercise having some connection to these tremors. I can really tell her cortisol is lower as she went romthe closet last nite during the heavy rain. She was not panting or shaking, she just felt more secure in the closet. She will have to have Melatonin and the dap collar Monday is supposed to be real stormy. It is raining hard now and she is just laying there listening to it. She is good until the thunder starts, then forget it. It is getting closer to the ultra sound at the hospital, and I am already nervous thinking about it. If I never get anything else the rest of my life I will be content just with good reports on Tipper. In the end that is all that matters to me. I just think it is so torturous having to do this every three months but we have no choice. Dechra told me yesterday from Tipper having so many ACTH tests that they think it drives her cortisol up a bit when she is tested. It seem her post is much better when she is more relaxed. That is why they said no testing for three months. We shall see how she gets along on this dose, she does not have much wiggle room before going low, so this does make me nervous. Blessings
Patti
Re: Tipper - adrenal tumor/breathing issues
Patti,
Hopefully this dose will be ideal for now. It seems that Daisy's symptoms act up for a few days after an ACTH test so Tipper's might too.
Keeping my fingers crossed.
Re: Tipper - adrenal tumor/breathing issues
Sounds like Tipper has been enjoying all her outside time..and Toby too. I see lots of very peppy Yorkies in the park everyday and a couple of them are actually running alongside their jogging owners so I'm not surprised Toby keeps up with you and Tipper when you're walking.
Tippers numbers sound really good to me...her pre came up from last time to a good spot. When she had the .9 last test she hadn't shown any signs of going too low and now the post is up so even though we always have to remain cautious it sounds like she's doing really well on this dose. Seems like she's in a really good place judging by her behavior...Cushings symptoms are controlled but she still has energy and appetite...I think you should be happy with these results. You always watch her carefully and you would immediately see if anything seemed amiss.
We are supposed to have thunder storms on Tuesday as it moves East from where you are. I notice Trixie much less nervous about the noises from the rain now that her cortisol is lower. When she was not controlled she would hide and shake like crazy...she would even go under the table when it was raining with no thunder. I hope it stays like this, I hated to see her shaking in fear during storms.
Glad for Tipper that she can have a break from the tests at least for a little while. Hope she continues to feel good and that the tremors ease up.
Barbara
Re: Tipper - adrenal tumor/breathing issues
Hi Patti,
How are you and Tipper doing today?
Nadia
Re: Tipper - adrenal tumor/breathing issues
Nadia:
Tipper is doing pretty good, but I can tell her cortisol is lower as every time someone starts a mower or something she is jumpy. We are supposed to have storms Monday nite and I am concerned about that too.For the most part she is doing well, and able to get her exercise in now that the weather is better. It seems Lola is in a good spot too. I just hope Tipper's pre number doesn't go any lower. Blessings
Patti