Wow Patti!
Someone is looking out for the two of you!
Prayers coming your way!
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Wow Patti!
Someone is looking out for the two of you!
Prayers coming your way!
Patti, even though it is counter-intuitive, I believe trilostane treatment for pituitary-dependent Cushing's usually enlarges the adrenal glands rather than making them smaller. I am not sure about the impact on adrenal glands if there are tumors present there. But just wanted to mention this so you'd know that adrenal enlargement, at least to some extent, is actually the norm for the majority of trilostane patients.
http://www.ncbi.nlm.nih.gov/pubmed/14703251
Marianne
You can do this Patti. We are with you. Praying for you and Tipper the Ripper.
Sending hugs and prayers, fingers crossed, paws too!!!
Hi. I was just catching up on things with Tipper. You had wondered about Kaibo. Yes, Kaibo did have an adrenal tumour that was causing the Cushing's. He was treated with Lysodren but we were having a hard time keeping him in the maintenance phase. At one point, a vet at the college thought the diagnosis of Cushing's was wrong so she wanted him off of Lysodren for at least a month and then repeat an ultrasound. He had several ultrasounds previously both at the vet clinic and at the teaching hospital. They finally saw the tumour in April. We decided quickly that he would have the surgery despite the risks, especially because he is only 6 years old. We expected the surgery to happen quickly but they wanted to know if it was a pheochromocytoma (pheo) or not. While we were waiting on those test results (they tested urine catecholamines) he was diagnosed with diabetes so the surgery was put on hold until his blood glucose was controlled. During this time, his Cushing's was not being treated. It was hard seeing all of the Cushing's symptoms return because we had seen such amazing improvement with him when on the Lysodren.
Someone mentioned the numbers of pre and post ACTH test meaning something. I wonder if you were thinking of the low dose dexamethasone suppression test (LDDS). In that test, the results at the 4 and 8 hour time can help determine if the Cushing's is caused by the pituitary gland or the adrenal gland. Kaibo never had high blood pressure so that was another way to rule out it being a pheo. I am not sure what else to write at the moment. If you have questions ask away!
I know this is all very scary and overwhelming. The key for us was to remain positive. Always focus on what is good in your life. There is something to be grateful for every day even when it seems like there isn't. I wish you well on Friday and will be watching for an update.
Take care.
Kaibo and Nikki :o
Hi Everyone:
I am a nervous wreck, but decided to post as Tipper is at my feet going crazy. She is so hungry this is going to take everything I have to get thru this. Three times in three days is a lot to expect from her. I never slept a bit last night and got Tipper to bed late so she would sleep late and not be hungry so long. It did not work, she was up at the crack of dawn. My favorite time of the whole day is her sticking her face in mine and kissing me to wake me. Little did she know how still I stayed, and in one position not to wake her. I must have gotten a call last nite after I silenced my phone, from the hospital. They informed me a radiologist was now going to do Tipper's US. I told them I had to have a report on what exactly this was, so maybe they changed from the IMS to a radiologist. I think that is even better I hope??? I will have a Dr. that reads these things looking at it, which seems like the best scenario to me. Had some coffee and it gave me a stomach ache as I was unable to eat much yesterday. I hate those moments where your whole world seems to turn upside down. All of you on this forum have shown Tipper and I such kindness and have been so helpful in this journey. I could not do this with out the support of this forum. Each and everyone of you that have posted to me are wonderful, and I appreciate all of you immensely. This will be in God's hands today and I pray he has mercy on my precious girl.
Blessings
Patti
We also go to Dr. Peterson at PVSEC!! Good Luck!!!!!!Quote:
Originally Posted by goldengirl88
Patti-Drive safe, and I'm praying for you and Tipper. You are in the BEST hands at PVSEC. I have such faith in thier entire staff. love and hugsQuote:
Originally Posted by goldengirl88
Patti, I just got caught up on Tipper, and I am wishing you the best of luck with things today. You and Tipper are in my prayers and I will be thinking about you. I will be watching for an update.
Hugs,
Tina and Jasper
Hang in there, you are doing just fine, best of luck today